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2025 - Davin Lives - Hello Life Blog

2025 - Year 3 of Living with ALS. This is my blog about how to fight ALS and stay positive. Last year was extremely challenging. I have lost my independance however I am still alive and I am super grateful for the huge amount of support from my friends and family . Love is pretty much the only thing thats keeping me going. You can email me at davinlives@gmail.com


2025 BLOG - I AM ALIVE

April 2025

6-12 APRIL 2025 - Caribbean Cruise


Karen and I went on a Caribbean Cruise just recently for a her birthday present. The boat was enormous 15 floors above the water line with 3 pools. Dozens of bars, restaurants and a casino.

We also visited the Bahamas, Cozumel and Cayman Islands. It was a great chance to relax and soak up some much needed sun and swim in the pools and hottub. The boat was Celebrity-Reflection and was quite accessible.

Staff were friendly and the food was good. We left out of Ft Laurderdale Florida. Overall it was quite affordable and a really great experience I would highly recommend to anyone in need of a break. I am very grateful to be able to make this trip.

March 2025

6 MARCH 2025 - Sparkling Hill Resort


Karen and I checked into the Sparkling Hill Resort and Spa for three days for a retreat. It is really nice here and from the minute we arrived I started to relax and feel the stress disappear. Apparently this place is ranked number 1 in Canada for accessible resorts. It certainly gets top marks from me with an accessible room, and they even have a pool lift making it possible to enjoy the hot tub and pools.

The resort has great dining options with three restaurants. There also multiple saunas and steam rooms, massage treatments and a cryo chamber at -110Celsius! Most of the steam rooms and saunas are accessible with low benches and wide doors. I highly recommend this place for a great getaway.

February 2025

January 2025

28 JAN 2025 - 2.5 Million Stem Cells


Hope Bio comes through again. I’m getting 2.5 million stem cells injected into my spine and bloodstream. These are my own cells that were harvested last year and then cloned at Hope Bio labs in Houston TX. These cells can then replicate and repair muscles, skin, organs or hopefully in this case nerve cells and motor neurons.

At this point I am willing to take all the help I can get. I am starting to lose mobility in my hands and arms now making it difficult to even type this.


06 JAN 2025 - An old ride

I am fortunate to now have Frank's old ride. Its a Dodge caravan with a ramp so I can roll in with an electric wheel chair. Frank is dead now but I have his van and I am grateful for the increase in mobility this setup now offers. When he first left us I said I didnt want the van. I was still in good health. Not now.

At this point I am willing to take all the help I can get. I am starting to lose mobility in my hands and arms now making it difficult to even type this. I am grateful for the help of Victoria and James and his family and much respect to Frank.


This is my new blog. There is so much I have learned in my life so far that I would like to share with you all. Thank you to all my dear friends and family, I love you very much

I have now recently been diagnosed with Amyotrophic Lateral Sclerosis - ALS - a rare and fatal neurological disease which really sucks.

Hopefully some of the resources and my experience here might be useful for other people who are suffering from this awful chronic illnesses. The rest is simply an attempt to stay positive in the face of a devastating disease.



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